Lexi Reed.Photo:Lexi Reed/Instagram
Lexi Reed/Instagram
Lexi Reedis trying to stay positive while knowing that there’s a chance her calciphylaxis could return.
On Monday, the fitness influencer posted a Q&A on her Instagram Story and responded to a follower who asked if she was still in remission from calciphylaxis. Calciphylaxis is a rare and serious condition in which calcium builds up in blood vessels and blocks blood flow to the skin, according toCleveland Clinic. It can lead to open wounds and potentially deadly infections.
“Yes,” the 32-year-old said of being in remission. “My wounds are currently closed and praying daily they won’t reopen as they have before.”
Lexi Reed/instagram
Never miss a story — sign up forPEOPLE’s free daily newsletterto stay up-to-date on the best of what PEOPLE has to offer, from celebrity news to compelling human interest stories.
Reed also let her followers know that she’s been gaining her leg strength back while in remission, as calciphylaxis left herunable to walk or stand on her ownfor several months.
“Are you having any more weakness in your legs?” one person asked.
“Yes but thankfully I haven’t fallen in a few months,” Reed shared. “I try to go to the gym when I’m with [husband]@discoveringdannyjust in case it were to happen again & I couldn’t get up.”
The content creator said the weakness also prevents her from doing a lot of exercises at the gym without modifications, like squats, lunges and running.
“Better than it was but it’s just really limited to certain movements and trying to slowly build my strength back daily,” she said, adding in another post that “so many things were taken from me” during her calciphylaxis battle.
Lexi Reed.Lexi Reed/Instagram
In July, Reed posted a video onInstagramof herself ringing a hospital bell after59 weeks of calciphylaxis treatment. The long-awaited moment came more than a year after Reedannounced that she was diagnosed with the rare diseasein thepainful aftermath of her kidney failurein May 2022.
She has oftenshared her journey with the diseaseon social media, making her ability to share the health update one that caused her to be “full of emotion.”
“FIFTY NINE WEEKS OF WOUND CARE (13.5months) & THEYVE OFFICIALLY GRADUATED ME AS HEALED + I GOT TO RING THE BELL FOR WOUNDS HEALED 😭😭,” she wrote at the time. “I’M CELEBRATING THIS MAJOR MILESTONE & putting all my faith that I’ll continue to beat this disease.”
Reed revealed in her video that her treatment involved caring for over 30 wounds and that her appointments initially lasted over five hours.
“This has been such a battle full of all emotions, but giving up has never been an option!” she added. “This video may show a big victory, but every daily struggle has been worth it & I’m so grateful to be where I am now! I’ve waited & prayed for this moment a LONG time despite it all!”
The following month, Reed announced that she was in remission. She shared the news with a video of her first time back in the gym since her diagnosis.
source: people.com
